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A qualitative study of the psychological experience of patients waiting for a second kidney transplantation
WANG Yuxia, XU Yihong, TANG Xinyi, CHEN Xiaofei, PAN Hongying
Chinese Journal of Nursing    2023, 58 (18): 2189-2194.   DOI: 10.3761/j.issn.0254-1769.2023.18.002
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Objective To describe the real psychological experience of patients waiting for a second kidney transplantation,so as to provide references for clinical medical staff to formulate targeted intervention strategies. Methods The descriptive qualitative research method was adopted. 15 patients waiting for a second kidney transplant were recruited from a hospital in Zhejiang Province by purposive sampling. Semi-structured interviews were performed to collect data,and qualitative content analysis was conducted to analyze the data. Results 4 themes were extracted,including the strong desire for a second kidney transplant,feeling guilty and worried for waiting a second kidney transplant,feeling deeply grateful for the medical staff’s support and being confidence for a successful second kidney transplant. Conclusion Clinical medical staff should attach importance to the psychological experiences of patients waiting for a second kidney transplant and construct patient-centered psychological intervention schemes by cultivating patients’ positive emotions,enhancing support level to improve their quality of life.

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Qualitative research on the feeling and experience of medical staff on neonatal hospice care
LI Mengting, CHEN Shuohui, CHEN Xiaofei, CHENG Xiaoying, LUO Feixiang, MEI Lingli, ZHOU Jinyan
Chinese Journal of Nursing    2022, 57 (8): 908-913.   DOI: 10.3761/j.issn.0254-1769.2022.08.002
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Objective To understand the feelings and experiences of medical staff on neonatal hospice care,and to provide a reference for the development of neonatal hospice care. Methods Descriptive research methods were used to conduct semi-structured interviews with 13 neonatal clinicians and clinical nurses,nursing managers,medical social workers,hospice care doctors and nurses,and the data was analyzed using targeted content analysis. Results 5 themes were extracted,including the needs of the dying newborn,the needs of the family of the dying newborn,the communication between doctors and patients,the timing of intervention for hospice care,and the multidisciplinary team of hospice care. Conclusion Medical staff should pay attention to the needs of dying newborns for pain reduction,comfort care,nutritional support,sense of security,and the needs of families to accompany children,emotional support,information support,professional guidance,understanding and respect,when conducting the neonatal hospice care of newborn babies. Effective and good communication between doctors and patients should be promoted. It is needed to consider the timing of intervention and the child’s disease condition and family will. Multidisciplinary collaboration is a good model for the development of neonatal hospice care.

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Construction of neonatal hospice care service system
CHEN Xiaofei, CHEN Shuohui, LI Mengting, SHEN Qianqian, LUO Feixiang, CHENG Xiaoying
Chinese Journal of Nursing    2022, 57 (22): 2707-2713.   DOI: 10.3761/j.issn.0254-1769.2022.22.003
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Objective To construct the hospice care service system for neonates for clinical practice guidance. Methods Based on humanistic nursing theory and comfortable nursing theory,a consultation questionnaire was developed via literature review and qualitative research during September to November 2020,and was distributed to 25 experts from 7 provinces and cities for Delphi expert consultation and neonatal hospice care service system construction. Results The questionnaire recovery rates of the 2 rounds of expert consultations were 100%;the expert authority coefficient was 0.852;Kendall’s concordance coefficients were 0.124~0.212 and 0.111~0.204 respectively (all P<0.001);the variation coefficients of the 2 rounds of item importance score were 0~0.34,0.07~0.24,and the variation coefficients of feasibility score were 0~0.39,0.08~0.24,respectively. The neonatal hospice care service system was formed with 4 first-level items,12 second-level items,and 38 third-level items,including multidisciplinary team cooperation,intervention timing,service recipients,service content. Conclusion The neonatal hospice care service system is scientific and feasible,which can provide certain guidance for the clinical practice of neonatal hospice care.

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Nutritional support management of a child with congenital tufting enteropathy
CHEN Xiaofei, CHEN Shuohui, LI Mei, SHEN Qianqian, FAN Meihua
Chinese Journal of Nursing    2022, 57 (12): 1512-1515.   DOI: 10.3761/j.issn.0254-1769.2022.12.016
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Congenital tufting enteropathy is rare to see in clinic,and it could be life-threatening due to intractable diarrhea in the early stage. The nutrition management was the most important and difficult part of nursing care. This study aimed to summarize the nutritional support experience of a case with congenital tufting enteropathy. In this case,we provide the personalized nutrition support based on nutrition screening and evaluation,and carry out parenteral nutrition support as soon as possible to help the child get fully potential of growth,as well as to get the metabolism balance. Besides,the timely enteral nutrition support was also used to improve the nutritional status of the child. Prevention and timely intervention for common complications were used to achieve clinical benefits. After a 60-day nursing care,the child’s condition was well-controlled with steady increasing in height and weight.

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